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A Common Grief – giving voice to miscarriage

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Over the past few days, the entertainment headlines have been abuzz with Gwyneth Paltrow’s revelation that she nearly died miscarrying her third child.

The timing of the admission (she has just released a new cookbook) has been met with cynicism by many journalists. Even my favourite source of intelligent gossip, Lainey Gossip, has been damning in her assessment of the situation. She says:

“…am I the only [one] who’s choking back the As IF over the timing of it all? Here’s Gwyneth who prioritises privacy. Here’s Gwyneth selling a new book. Here’s Gwyneth sharing private details about a very personal tragedy to a British tabloid (I don’t care if they try to class it for the Mail On Sunday — it’s still the DAILY MAIL). And you’re telling me it’s a coincidence and not a conspiracy? Please. What it is is…Gross. And worse, for her at least… Super common. Like Kardashian common.”

I don’t agree with Lainey on this one. I think Gwyneth has set a precedent for being open and honest about the difficulties of motherhood…like when she admitted last year that she’d suffered from postnatal depression. Call me naive if you will, but I think she genuinely believes talking about these issues will help normalise them…and help people understand it’s ok to tell people about them. They don’t have to be secret.

I miscarried my first pregnancy at eight weeks…I remember excitedly telling so many people (as you tend to do with your first pregnancy, not yet knowing how fragile and fleeting it can all be) and then having to explain it was all over not too long afterwards.

At the time, I felt really alone and felt like it was expected I should speak about it in whispers…and it’s not until you actually confide in someone that you realise how many of us have suffered miscarriages. We just don’t talk about it…and we should.

Last year, HerCanberra’s Heidi Silberman contributed to the anthology The Sound of Silence – 22 women’s stories of miscarriage, edited by Canberra’s Irma Gold. I thought it was timely to revisit her powerful piece. Read it below.

I shifted uncomfortably on sticky vinyl in a waiting room crowded with germs. A man coughed noisily behind a magazine, mothers wiped snotty faces and someone in the corner had a distinctly green tinge.

I wasn’t sick in fact I felt healthier than I had for weeks. That was part of the problem. That and the bleeding.

The doctor called me in.

‘I’m twelve weeks pregnant and last night I started bleeding.’ I said, tears behind my eyes.

He clasped his hands. ‘Bleeding doesn’t mean you’re miscarrying.’

That’s hopeful. I thought, relaxing a little.

‘If it is a miscarriage though, it’s just nature’s way of saying it’s a non-viable pregnancy. There’s nothing you can do about it, you just go with the flow.’ He said, hands waving.

‘Go with the flow?’ I’m bleeding, my baby could be dead and you’re telling me to ‘go with the flow’?

‘If you were working I’d tell you to take the day off and put your feet up.’

But as I’m a stay-at-home-mum I can spend it chasing two toddlers.

With an estimated one in three pregnancies ending in miscarriage it’s no wonder some medicos are blasé, but for the parents concerned it’s not an everyday occurrence. Some can ‘go with the flow’ and some cannot.

I woke the next day to a dull ache in my abdomen and lower back. Waving goodbye to the kids and my mum I said ‘I’ll be back soon.’ Declaring in this small way that everything would be OK.

My GP (a different one, complete with sympathetic bedside manner) thought otherwise, sending me to hospital where in another reckless display of hope I parked in a two hour spot.

On the ante-natal ward process took over. A midwife did some obs, the registrar repeated them. They performed an internal examination. ‘This will feel just like a pap smear.’ It didn’t. They took blood to check my hormone levels. ‘The results should come back in under an hour.’ They didn’t.

I rang my husband Dave, then returned to the ward to wait.

‘Is hubby coming?’ a midwife asked.

‘No.’

‘Why not?’

‘I don’t know.’

‘Give me his number.’

I didn’t want him to come. If he didn’t have to everything would be fine. If he did it meant bad news. But all this time the ache was turning to pain.

Dave arrived, we talked about the baby, cars, work. Then suddenly the pain became too much. He rubbed my head and held my hand while I sobbed and groaned. I hadn’t known how physically painful a miscarriage can be. It hurt like labour.

They gave me Panadeine Forte. I was scared I would fall asleep, my baby would disappear and I would wake up empty but I took it for the pain. It hit me hard. I tried to think, to focus on something, anything.

The midwife came in.

‘The doctor will be here to talk about the blood test results.’

I wish they wouldn’t say things like that. It was another forty minutes of drugged anticipation before she came.

‘You’ll go and have an ultrasound.’

I wondered if I had slept after all missing half a conversation. Four and a half hours waiting for blood results and she was talking about an ultrasound? I forced my eyes open, interrupting her in my slurred voice.

‘What about the blood test?’

She told us a number – nine-hundred-and-something. ‘It’s low for 12 weeks.’

‘So it’s not looking good?’

‘No, it’s not looking good.’

I hoped to see my baby on the screen – a perfect little person like in the pregnancy books. But it wasn’t perfect. It had died weeks earlier, before I even knew I was pregnant.

The bleeding increased as suddenly the pain stopped. My body expelled something. No baby, just a small browny purpley spotty sack, leaving an emptiness like nothing I had ever known.

The next morning three doctors stood at the end of my bed. I had showered and breakfasted, but was under the blanket again, grieving. The senior registrar spoke.

‘So what happened after the ultrasound yesterday?’

Read my notes I wanted to say.

Ask your registrar I wanted to say.

If you can’t work it out I’m not going to tell you I wanted to say. Surely I didn’t have to say it out loud? But I did.

They sent me for another ultrasound to see what was left. A doctor came in.

‘So what happened after yesterday’s ultrasound?’

How was it that so many doctors with years of university training still couldn’t read? Surely this information was in my notes. Surely he knew. Why did I have to say it again?

A trip to pathology followed. I mentioned to the young woman that I had just had an ultrasound.

‘That’s weird they’re testing the level of pregnancy hormone. Ultrasound shows more clearly than a blood test how far along you are.’

‘I’ve had a miscarriage.’ I was getting used to saying it now.

She rubbed my arm with alcohol. ‘Oh. I’ve got a friend who’s just had a miscarriage. She’s shattered – she’s just not coping.’ She shook her head, shrugged her shoulders and put the needle in my arm.

She didn’t understand. I could have enlightened her. I could have screamed ‘Of course she isn’t coping – her baby has died, how does anyone ‘cope’ with that? I may look like I’m coping, but yesterday I was pregnant and today I’m not.’

But I didn’t. I was becoming accustomed to insensitive medicos who didn’t know any better.

And yet I appreciated the wonderful sensitivity of others. Midwives who listened to me, who gave me paper and pen at 4am, who called my husband, who were there to catch the remains of my baby.

The sonographer, gentle and sorrowful. The social worker who listened and gave helpful information. My friend, working at the hospital who gave me hope by saying ‘If I hadn’t had my miscarriage I wouldn’t have my Tom.’

They ran tests on the embryo and I rang a few weeks later for the results. The woman came back to the phone.

‘You there?’

‘Yes.’

‘Blighted ovum.’

‘I’m sorry?’

‘Blighted ovum.’

‘Oh. Right.’

Looking up the term, I learnt that the fertilised egg had failed to develop. There are multiple ways to pass on information, and to some people stark medical jargon unencumbered by kindness, sympathy or even a complete sentence is the way to go.

But what if everyone dealing with a woman experiencing miscarriage understood that this day will be burned in her consciousness forever? That they have an opportunity to make it a little easier for her? That all it takes is thirty seconds to glance at her notes or explain a procedure, and no time at all to acknowledge her grief? They can’t save her baby, but perhaps they can help create softer memories.

Have you had a miscarriage? What’s your story?

NB: You don’t need to use your real name to comment, if you’d rather do so anonymously…

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9 Responses to A Common Grief – giving voice to miscarriage

Anon says: 21 March, 2013 at 9:19 am

This story made me tear up, at my work desk (lucky I can hide my face!), because it is all too familiar for me. I’ve had two miscarriages from two pregnancies, the first at 9 weeks the second at 5… no successful pregnancies… yet.

The first was devastating. After trying for quite a while we were finally pregnant until at about 6 weeks on I had a little bit of bleeding, sent for an ultrasound and it was too early to see a heartbeat, I just had to “wait and see”. The bleed subsided somewhat, I got my hopes up, two and a half weeks later, ultrasound #2, no development, no heartbeat and me in utter devastation. The sonographer was fantastic, sympathetic and caring. “Let me down” very gently, ensured that no one was in the waiting room so that I could leave without others seeing my tears. The follow up with the GP (not my regular) was not. Told me I would have to wait it out, for it to be expelled naturally. When I asked “what can I do? I want it out now” she said no, natural was best. Now I have a somewhat medical background and knew this wasn’t right but in my fragile state I believed her. I wasn’t offered counseling or anything either. Handing me a tissue was the most comforting she did. After speaking to my mum and MIL I was told in no uncertain terms to see another Dr and get an appointment to head to the hospital for a D&C. Which I did. There were some complications but nothing too major but having the surgery was an important step in my mental recovery. I just wanted to leave the experience behind and continue on my journey of (hopefully) becoming a mother.

The second one was a “natural” miscarriage very early in the piece, I have maybe even convinced myself that it was a false-positive on the pregnancy test. I think the hardest part is that once I started talking about it with friends, I was surprised how many had experienced similar issues. So common, yet still taboo. My GP even said that they’re so common that they don’t even test for abnormalities until you have 3 in a row. Which is reassuring in one way (meaning they don’t think it’s abnormal to have that many, statistically) and frustrating in others (as I would like reassurance that nothing is wrong after having two!). The hardest part is being excited for all my friends who are pregnant or have newborns. Of course I love them and am excited but I’m also hurting inside thinking “why me?”, then feeling guilt about not being super happy for them and because I know other people have it worse and I should be at least thankful I can fall pregnant. I’m also scared because if I have another one, I don’t know if I could handle it. It’s hard because people don’t tell you that falling pregnant and staying pregnant can be really difficult. They talk of maternity wear, swollen feet, itchy bellies etc but never really of the more tragic aspects of pregnancy. I hope this can change. I’m looking now at buying the book from this article. Knowing others are experiencing something similar could really help.

**sorry this is so long!

Melinda Small. says: 21 March, 2013 at 11:43 am

Amanda, thank you for sharing 🙂 I also had a piece in the ‘Sounds of Silence’ – for me writing about it was cathartic and having it published even more so. It felt like I could finally put my hand up and say, you know what, I am OK to talk about this and acknowledge that it was my experience and it hurt.

I have had 3 miscarriages and at the time (all within the same year) it was very hard to to make sense of it all. I was young (25 at the time), had 1 healthy toddler, was healthy myself, very active etc etc and yet I felt like I was 100% to blame. My own mother who has 6 children had also experienced numerous miscarriages so I tried to trump it up to genetics. Whatever it was, it broke my heart and I recall so clearly trying to be fine because people that didn’t understand the level of grief, honestly didn’t understand and wanted/expected me to be so. I have since learnt this is of course the same with any life trauma.

My partner I and are not far off trying for our first baby together (my two children are with my ex-husband) and I have recently started having all of these feelings of anxiety wondering if I will experience another miscarriage again and if so, how he will cope with that, how will I. I have even gone as far as to try and prepare him for that outcome because 6 years ago or not, I remember deeply harrowing it can be.

Maybe that’s the thing with life experiences, they taint you. They forever stain a little part of you that may otherwise have been unblemished.

Margaret Whitley says: 21 March, 2013 at 12:20 pm

I miscarried at 8 weeks at home (50kms from nearest hospital) and knew as I saw the silvery sac approx the size of a 50cents coin.. Very very tiny but still a baby!! My very much wanted baby!
I was devastated but my husband didn’t understand my pain. To him it wasn’t a baby, just a foetus!
The only one who understood my pain was my Mum who came to visit as soon as she could after it happened.
Even now I wonder if it was a little boy with blue eyes like his Dad or another beautiful little girl like my first two children?
I wonder if he/she would have given me as much love and respect as my two beautiful daughters have?
I am only one of millions to miscarry and 38 years later I still have that sorrow!
Would he/she have looked like them or more like their Dad? Would he/she

Mel says: 21 March, 2013 at 12:23 pm

Thank you for the article 🙂
I have had 2 miscarriages – I was always thankful that we already had one healthy boy before we suffered our first miscarriage. I feel terrible for couples who miscarry their first child, as they would be worried that they couldn’t carry a child etc. I consoled myself with this fact 🙁
I was like others, 10 weeks, very excited, told close family and friends – the worst part – was “untelling them” – it was hard for us, but it was also hard for them. Yes, “blighted ovum” – I’d never even heard of it before.
I miscarried at home, in the middle of the night, 80kms from the nearest hospital. It hurt like hell and I cried the whole time.
I felt like the floor dropped out of my world, and I felt like my partner didn’t care. I’m sure he did in some blokey way but I didn’t see it. We broke up for 6 months.
We got back together after a fairly dark time for me and planned another baby. We had our daughter – healthy and happy.
and then we miscarried again – this time I almost died – I was on holidays and lost more than half my blood – ruptured ectopic pregnancy – I didn’t even know I was pregnant – 10 weeks along (still getting a period, etc). I just thought I was experiencing terrible period pain, but I was losing another baby.
Both miscarriages were really crappy times in my life. I know that’s the understatement of the year, but all I can manage to say about it 🙁

I feel sorry for Gwyneth – that people feel they have the right to judge her at this time. No one knows how she’s feeling – they should try walking in her shoes.

Margaret Whitley says: 21 March, 2013 at 12:40 pm

Sorry with two sick grandchildren here my train of thought was interrupted. The last sentence in my previous comment ,as you’ve probably guessed, was supposed to be deleted.
A little teary here reading the prior two comments. I feel for you very much, Melinda and Anon.

Heidi Silberman says: 21 March, 2013 at 5:08 pm

Thanks Anon, Margaret and Mel for sharing your stories. The more we talk about this the less taboo it becomes and the more we can hold onto each other and comfort each other in our grief. I wrote a piece for another book on miscarriage last year – this one has a Christian focus, it’s called In God’s Hands. http://www.evenbeforepublishing.com/index.php/our-books/christian-living-books/45-in-god-s-hands

Then I thought I was done. I’d got it out of my system and that was that. Until I started writing a play and a miscarriage became central to the journey of the main character. I hadn’t expected that at all, perhaps I’ll never really get over losing my Ashley.

Stephanie Burgess says: 22 March, 2013 at 7:50 pm

Thanks for this article, Amanda, and for sharing your heart-breaking experience.

Unfortunately, as it is with many heart-breaking experiences, the ordeal of miscarriage is far too often ‘hushed up’, or swept aside or down-right ignored… Why that is, I really have no idea. Perhaps its because those who suffer through the ordeal look ‘just fine’ despite the pain they’re going through, giving those around them the dilemma of ‘do I or don’t I’ when it comes to raising the subject… No one wants to tip someone over the edge if they really are managing as well as they appear to be… Or perhaps its because the mystery surrounding why some people are impacted by miscarriage and others are not makes people unsure as to what to say… No one wants to make someone else feel as though they’re in some way inadequate… Or perhaps its something altogether else… Whatever it is, it needs to stop. Because speaking from my personal experience, I’ve found that nothing makes someone feel quite as alone in the world as when you mistakenly believe that you’re the only one who has ever been quite so inept at something.

I have two strapping sons, who are the precious result of at least five pregnancies. Of the three miscarriages that were confirmed, the first was, obviously, the hardest. There were so many factors which contributed to that being the case… The catastrophic fall from the highest of highs to the most empty and devastating of lows, the uncertainty as to whether it would be repeated in the future – leading to a childless journey ahead, but also the absoute blind-side of it all… When I’d had that ‘we’ve decided to try for a baby’ chat with my doctor, at no point had the subject come up. When the pregnancy had been confirmed, still nothing regarding the odds of miscarriage. And then when the bad news was delivered, it was with a shrug from the nurse and a resigned ‘Honestly love, its very common. People just don’t talk about it much.’

Now none of the above is intended to be a shot at the medical profession or the practioners involved. My family doctor has known me for years and I think she’s superb. And I have the highest regard imaginable for nurses (who, along with teachers, are the most undervalued members of the community in my opinion). But surely something which is as common as it is traumatic should be a topic that is on the tick list for any naive, bright eyed new mother who has the foresight to actually ask for advice. It doesn’t stop there though. My mum had had a similar medical history to mine, as it turned out, and was a great comfort to me during the process – but she’d never thought to raise it, because no one had ever raised it with her. And my mother-in-law did the unthinkable and told me that in her day things like that never happened, and that my generation were doing something wrong… when in reality it was just that she’d not heard much about miscarriage because it hadn’t happened to her and therefore no one had ever had need to raise it with her! Argh!

The over-riding theme here is the lack of communication. Why this has become a taboo topic is something I have never understood. I guess no one wants to make any mother-to-be anything less than ecstatic, but surely the processes can be put in to place to ensure that her elation can be based on knowledge, and that her sanity can be as protected as possible should the worst happen.

The other issue that I found flows from multiple miscarriage is an inability to attach to a pregnancy when it actually decides to proceed. Not so for me with my first son (who was pregnancy number two) but with my second son (number 5) I had so many scares along the way, that I just slipped in to self-preservation mode and almost refused to allow myself to connect to him the way I would have under different circumstances. I was terrified of the loss. Terrified that I couldn’t survive another one. And it really wasn’t until he was born (in a serious hurry 🙂 ) that I let myself fall in love with him (instantaneously, fortunately) – purely out of fear.

I really feel that all of these issues could use more attention in the ‘what to expect’ type manuals on the topic and in the conversations that we have with young women contemplating motherhood. It is common, very. But that doesn’t make it any less soul-destroying when it happens to you. And ‘me too’ have got to be the two most comforting words that any woman can hear from her support network under those circumstances. Miscarriage needs to come out of the ‘better not mention that’ category and into acceptable conversation. Looking back, I would have found that a far gentler and kinder approach than the one which I lived.

Anon says: 26 March, 2013 at 12:48 pm

Thanks for your story Stephanie. It gives me hope to know someone who has been through this awfulness now has two healthy boys. After my two m/c and no successful pregnancies as yet, every time I test I am in complete fear of going through it again that I’m almost wishing it to be negative (though then when it is negative I’m equally upset). My husband is probably taking it even worse than I am. He’s more emotional than me and is finding it hard himself while being the most amazing support possible.

I agree that it needs to be pulled out of the taboo box especially within families. I ensured that my sisters, particularly, knew what I was going through in case there were health implications for them. And after talking to my brother after the second one he said “thanks for telling me but you should have said something sooner, then I could have supported you and prayed for you”. Was nice and refreshing..

Sonja says: 27 March, 2013 at 1:51 pm

I feel so much thankfulness to read this article and the comments. I suffered two miscarriages after having my daughter. I always wanted more kids. It’s an awful process to go through and I am grateful that my husband is so loving and supportive. It made us sad. We don’t know if we can go through it again even though we share no children together and wish otherwise.

I think it should be discussed openly and those that have lost should be given the open space to grieve. I also think there needs to be more education on the subject.

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